It was almost exactly a year ago that I was faced with some hard decisions. After four years of complete stability, one tumor in my supraclavicular lymph node had decided to go rogue and quit responding to the immunotherapy I was on. I named it “Wayward Tumor.”
From one clinical trial to another
When my oncologist told me that I was being taken off of the clinical trial because of tumor growth, I wasn’t particularly worried. That’s just how much confidence I had in him having something else for me to try.
I have always been a person of deep faith. I don’t go to church like I should, to say the least, but my faith is very strong. When I was diagnosed with lung cancer, I guess the idea that I would likely be meeting my Maker sooner rather than later caused my faith to become even deeper. Whatever the cause, my faith runs deep and it is very important to me. Studies find that many people find that their faith strengthens in the face of a cancer diagnosis.1 But, certainly, not everyone with cancer shares the same belief system.
It was six years ago, but I well remember my first chemo treatment … and the days leading up to it. It was terrifying. We hear so many horror stories about chemo. It is no wonder we all face it with dread (understatement of the year).
Watching my dad’s treatment
I watched my dad go through chemo and radiation back in the 1970s for the same illness as I have – nonsmall cell lung cancer, adenocarcinoma. He handled radiation with no problem, but chemo was a different story altogether. He was so sick from it. I remember how pale he got and how weak. He was definitely not the poster child to encourage anyone to want to do chemo. So, I always said, “If I’m ever diagnosed with cancer, I will do radiation, but I will not do chemo.”
I’ve been trying to think of different topics that might be of interest to others who have some connection to lung cancer. I started thinking about some of the things I didn’t know when I was first diagnosed. There are just so many misconceptions that surround cancer, especially lung cancer. Here are a few of the things I learned soon after I was diagnosed:
1. Nonsmokers get lung cancer too
I guess I really never thought much about it one way or the other, but if someone had told me I would know more people with lung cancer who have never smoked than who do or did, I would have thought they were crazy.
Several days ago, I got a text message telling me that a former colleague and friend had passed away unexpectedly. I had seen her recently and she was her usual happy self. We made plans to get together for lunch soon. I guess none of us realized that her days here on earth were coming to a close. …More
Okay, this post is probably going to have a lot of people looking at me and thinking I have gone stark-raving crazy. But, here goes anyway!
What would life without cancer be like?
I participate in a forum whose participants have all kinds of different cancers. Today, a post was made that asked, “Do you get wrapped up in thinking about what might have been if cancer hadn’t come?” The person who asked the question is livid that she has cancer.
I am on a forum with people who have all kinds of cancer. A lot of the members have had breast cancer so many posts there relate to issues concerning that disease.
Recently, someone posted a message saying that the federal government’s Office on Women’s Health (OWH) had deleted all references to breast cancer, despite once having a rather robust amount of information available. Those with breast cancer were quite upset about the information being removed. Honestly, I thought it was a little odd, too, that it would be removed.
About the Life and Breath Rally
Needed: EVERYONE — No joke. We need everyone’s voice and support.
Date: Thursday, April 26, 2018
Time: 10 a.m. to noon
Place: Capitol Hill, Washington, DC
(First St. SE & Independence Ave. SE – on the east side of the Capitol building)
Nearest Metro Stop: Capitol South on the Orange, Blue and Silver lines
Register here: https://www.LABrally.eventbrite.com
Everyone needs to try to come if they can ! If we don’t raise awareness, who will? We have to get the word out that funding for lung cancer is not equitable and that people with lungs get lung cancer, not just smokers!!
If you cannot attend, please, please, please write to your legislators. If enough of us demand equitable funding for this national disgrace, it will happen.
Remember, 1 in 17 women and 1 in 16 men will be diagnosed with lung cancer. Which one of your friends or family members will it be? Don’t you hope that there is a treatment, if not a cure, to save them?
Lung cancer affects us all. And it is up to each and every one of us to do our part to see equitable funding for research.
I was just looking at my Facebook memories. I love those! I find myself posting things I want to remember to Facebook now so that they will show up in my memories in the future. Am I the only person who does that? More…
A few years ago, I wrote a number of blog posts for Patient Power. I am going to provide links to them on my blog. Happiness is My Normal was originally posted 4/28/2016