Category Archives: hope

Looking at the Positives of Having Lung Cancer – Am I Crazy?

Okay, this post is probably going to have a lot of people looking at me and thinking I have gone stark-raving crazy. But, here goes anyway!

What would life without cancer be like?

I participate in a forum whose participants have all kinds of different cancers. Today, a post was made that asked, “Do you get wrapped up in thinking about what might have been if cancer hadn’t come?” The person who asked the question is livid that she has cancer.

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Anxiety…An Unwelcome Visitor

I recently saw a study that found that lung cancer patients who do not have anxiety or depression live longer than those who do.1 I was surprised to find this information because I have always been told that attitude might make your remaining life happier, but it has no impact on how long you live.

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Busy, Fun Week

I have already written about my excitement on Monday when I got to be interviewed for NBC Nightly News. What fun that was!!! But, it was only the beginning of an incredible week!

First Monthly Opdivo Treatment

I had to rush to my treatment appointment after the NBC interview. For nearly five years, I have gotten my treatments every two weeks. My friends, that is a lot of doctor appointments, especially for someone who previously avoided doctors like the plague. On Monday, I started getting a double dose of Opdivo. I will only go for treatments once a month.

I am so excited to have more of my life returned to me. I was a little nervous though about potential side effects. Well, it is Friday night and I have felt fine the entire time since the treatment. Yes!!!

Fun in the Sun (and the Bluebonnets)

On Tuesday, my friend Deanna drove three-plus hours to meet me in Ennis, Texas. Ennis is known for its beautiful patches of bluebonnets, the Texas state flower. Now, if you live in Texas, you live for bluebonnet season! It is a rare Texan that doesn’t head out to the bluebonnets with their kids, their dogs, their grandmas, their husbands or wives for pictures.

Deanna and I had so much fun! She lives in Florida now so I don’t get to see her often. I was blessed that she spent one of her days of vacation in Texas with me. We had a blast driving all through Ennis and Palmer and surrounding communities searching for bluebonnets. I can’t say we found a lot, but we had a lot of fun laughing and talking up a storm!!

It had been a LONG time since I had had my good camera out. I was afraid I wouldn’t remember how to use it, but a lot of it came back to me. It was good to use it again. Unfortunately, I have to remember how to reduce the file size before I can share any of them here with you.

Working Out

Wednesday was a day of rest, but Thursday found me back at the gym with my friend Linda. We have been trying to work out at least twice a week since the new year began. She is a little better about making the goal plus some than I am. That’s probably why she’s having a little better results than I am, too!

Nevertheless, while I guess it is not “fun,” exactly, to go to the gym, I do enjoy getting together with her. Despite being tired and sore when we leave, I do feel more energized. I can tell I am stronger. Now, if only, I would lose some weight … or at least … some belly.

Thursday afternoon, I listened to a Webinar on advocating to Congress in preparation for the Life and Breath rally in Washington, DC next week. Immediately following that, I participated in a market research call. I always like to do those, both because I make a little spending money and because it is fun to see what potential commercials will be coming out. Oddly, I liked all three commercials I was shown. I typically don’t like or can find ways to improve the ads I’m shown.

Webinar Presenter

Today, I got to have another new experience. I got to participate as a presenter in a Webinar about immunotherapy. It was a lot of fun. I had worried about my Internet service not cooperating, but today it was good. If only the guy who does our yard hadn’t shown up just about the time the Webinar started… I suspect there will be a lot of lawn mowing noises in the background when the Webinar is published.

I also tried making a video to post on WhatNext. For a first try, it wasn’t bad. I got a kick out of the fact that Espy decided that it was the perfect time for some petting, affection, and purring. Like with the yard mowing, timing is everything!

I have a few down days now, which I need. I leave for Washington, DC on Wednesday morning. I have a 6AM flight so we’ll have to be at the airport by 4 AM. It takes about an hour to get there. Maybe I won’t go to bed??? I’m sleepy just thinking about it!

I hope you’ve also had a fun and interesting week!

 

Hope Springs Eternal

“Study nature. Love nature. Stay close to nature. It will never fail you.” –Frank Lloyd Wright

waterfall

Since I have been surviving cancer, I have really, really enjoyed visiting the gardens at the Dallas Arboretum. Whether I go with friends or by myself, I am filled with gratitude and peace while I am there. I consider my enjoyment of the gardens as one of the blessings of having cancer, because unfortunately, before being diagnosed with cancer, I never took the time to go.

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Originally published March 10, 2016

The Power of Owning a Pet

I am an animal lover. I always have been. When I was a little girl, my mother would let us have cats but not dogs. I remember frequently hugging a stuffed poodle and praying that God would turn it into a real dog.

As soon as I was on my own, I got a dog or two or three! I’ve had at least one my entire adult life. Usually, I have had two or more. They complete me. I suspect many of you know exactly what I mean.  …More…

Don’t Give Up: Taking Control of Your Life

donna-pastureI am sitting here staring at a blank sheet of paper, wondering what I have to say to you that will be worth your time reading it. I am no scientist. With the advent of chemo brain, I don’t even really enjoy reading and researching like I once did. So I have no great wisdom to impart.

What I do have to pass along is hope. Such a little word but one that has the ability to change your life. Hope crowds out anxiety and pushes away fear. It fills you with peace and can motivate you.  ….More

 

Happiness is My Normal

I was just looking at my Facebook memories. I love those! I find myself posting things I want to remember to Facebook now so that they will show up in my memories in the future. Am I the only person who does that?  More…

 

A few years ago, I wrote a number of blog posts for Patient Power. I am going to provide links to them on my blog.  Happiness is My Normal was originally posted 4/28/2016

 

 

Making a Difference

I had the most disconcerting dreams last night or early this morning. I dreamed first that I was on some sort of gas-powered bicycle (it looked like a regular racing bike in my dream). I stopped at a gas station to buy a dollar or two of gas, which was all it took, and decided, right then and there, that I was going to begin to bicycle across America to bring attention to the sad facts about lung cancer:

  • #433aDay die from it – that’s 155,000+ per year
  • While it kills more people each year than breast+prostate+pancreas+colon cancers combined, it gets less attention, certainly less than breast and/or prostate
  • Women need to stop fearing breast cancer like they do and start looking beneath that fatty tissue to their lungs. Lung cancer kills nearly twice as many women each year as breast cancer. (Breast cancer screening is vitally important. I don’t mean to imply otherwise.)
  • The amount of federal funding relegated to finding a cure or at least new treatments to prolong the lives of those with lung cancer is far, far less than that received by other cancer based on funding per life lost.
  • Anyone … ANYONE … with lungs is susceptible to being diagnosed with lung cancer. It is not a smoker’s disease. It is a breather’s disease.

In my dream, while at the gas station, I started trying to figure out how my ride was going to work. Where would I sleep? How would I advertise the facts I wantedpeople to know? What would happen when my tires blew out? How would I carry spares and how would I fix the bike? When would I eat? Just how would this ride across America work? Where would I get my cancer treatments? I surely could not complete this jaunt in one month, between my treatments.

Bluebonnets

You have to realize how idiotic this dream is. I haven’t been on a real bicycle in 30 years or more. I am 64 years old, with stage 4 lung cancer. I have been working out a bit most every week since the first of the year, but certainly, nowhere near enough to ride a bicycle across America, not even some rigged up gas-powered bicycle.

So, in my dream, I decided I wouldn’t ride the bicycle after all. Nope. I have two good legs. I would walk. I had a big, floppy felt hat. I was good to go. But, again, the questions arose: where would I sleep? How far could I walk each day? What would happen when my shoes wore out? Am I strong enough to carry a backpack for a mile, much less thousands of miles? (The answer to that is no!)

Okay … walking and bicycling, even in my dream, really didn’t make any sense at all. But, I was still left pondering how I, as one person, can make a difference, can bring attention to this terrible disease that isn’t, but should be, an outrage and embarrassment in America?

Still, I thought, how neat it would be to take a foot-trip across this Nation, camera and notepad in tow. Every day, I would take pictures and write blogs about what I saw, how I felt. And, people passing me on the highways and byways of this great land would come to know my story … and far more importantly, the story of every lung cancer patient, past, present, and future. Finally, perhaps news channels would begin to follow my journey and suddenly maybe the public would start to be educated about this killer that’s unfairly tagged the smoker’s disease.

Maybe serious conversations would finally start to take place. Maybe.

To borrow the title of one of my favorite songs:

hope

Hope

 

I can only imagine.

 

Sing!! Bellow it Out! It’s Good For You!!!

Do you like to sing? Well, guess what? Science says it is good for you to sing.

Benefits of Singing

Prevention magazine lists six ways singing is good for you:

  1. Singing eases your stress and improves your quality of life
  2. It can help you bond
  3. This one is BIG!!! Singing improves immunity in cancer patients!!!
  4. Singing may be good for your heart (it is definitely good for your soul!)
  5. Really? Singing helps curb snoring! (Your significant other may like this!!)
  6. Singing may help people with asthma

Wow! Who knew?

Even though I love it, I am a terrible singer. I used to get such a kick out of my little family when we would be in church. All three of us were singing our hearts out. All on a different key. And none on the same key as the masses. I know our pewmates wished we would just mouth the words!

Usually, that’s just what I do if I am in a crowd. I mouth the words. Even when we are singing happy birthday to someone. I am just so embarrassed that I can’t carry a tune. But, get me alone!!! That’s when the stops come out! I love to belt out songs that mean something to me.

Let’s Share Favorites!

So, the purpose of this blog is not only to inform but to share. I have some favorite songs that I want you to have the opportunity to hear. I hope one or more of them will speak to you like they do to me.

Overcomer

One of the most meaningful songs to me is Mandisa’s “Overcomer.” That’s what we cancer survivors are, right? Overcomers? Take a listen! (And, if you aren’t a cancer patient, there is no doubt in my mind that you are not overcoming challenges of your own. This song works for all of us!)

 

Blessings

Laura Story’s Blessings speaks volumes to me. We don’t have to look far to see blessings in our lives. And, sometimes, what seems to be the worst thing to ever happen to us isn’t.

‘Cause what if your blessings come through raindrops
What if Your healing comes through tears
What if a thousand sleepless nights are what it takes to know You’re near
What if trials of this life are Your mercies in disguise

Lots of people might call me crazy (no offense taken if you do), but I see so many blessings in my life as a result of my cancer diagnosis. I know you are thinking, “You must be kidding.” But, I’m not kidding at all. It isn’t that I wouldn’t rather not have cancer. But, since I do, I have to say, it has brought me many friends and experiences I would have never had otherwise. And, I wouldn’t trade them for the world.

It is Well with my Soul

Yes! It IS well with my soul! No matter what happens to my earthly body, I know where my salvation lies! It is great comfort to know that when I take my last breath here, my next will be on Streets of Gold in Heaven.

Casting Crown’s Oh My Soul

The night Casting Crown’s singer Mark Hall was diagnosed with cancer, he sat down and wrote “Oh My Soul.” It is a powerful song. Mark describes the motivation behind the song,

I just sat down on the piano and was looking at the verse where David says, ‘Why so downcast, oh my soul. Put your hope in God.’ So the song is me just having a little argument with myself and giving it to Him.”

God has my cancer, too, Does He have yours?

End of the Beginning

Another favorite song of mine has nothing to do with encouragement or cancer or counting blessings, but I just love this David Phelps (he’s one of my favorite artists) song.

 

There are more songs that speak volumes to me and that I love to belt out, but I will stop here. We’ll do another blog at another time with more songs.

As you can see, the ones that mean the most to me also have a lot to do with my faith. I couldn’t go through this battle without my faith.

What about you? What songs are most meaningful to you? Why? Let me know!