Cancer is nothing when you have hope!! This site is all about living … and living well … with late-stage cancer. I hope you will journey along with me through the ups and downs of living with lung cancer.
I’ve been rocking along lately as happy as a lark. I have so many good things in my life right now that yesterday I came up with a whole list of what having lung cancer has meant to me: new friends, new adventures, retirement and the time to enjoy life, the opportunities to serve on meaningful advisory boards and to, hopefully, make a difference for cancer patients one day.
The good and bad days
I celebrate living, every single day. I get up and face days so full that I can’t possibly fit everything in. And, nearly every day, I happily think, “life is good.”
When you can’t control what’s happening, challenge yourself to control the way you respond to what’s happening. That’s where your power is.
Have you seen this meme floating around on social media? It really spoke to me.
It reminded me of my friend Jane. I first met Jane about a year ago when she sent me a long email after reading a blog I had written. Jane has a couple of kids, a loving husband, and a thriving business. And cancer. Her cancer, unfortunately, overshadows everything that is good in her life.
We are entering the time of year that joins families far and wide together. We celebrate Thanksgiving and then come Hanukah and Christmas celebrations. It is a blessed and sacred time for many of us.
Remembering my son this season
It is also a time of reflection and sorrow, especially if you, like me, have an empty chair at the table this season. The holidays take on a whole different dimension when we’re celebrating all that is good in the world when it doesn’t necessarily feel like anything is.
Boy! I don’t know how you feel about it, but for me, 2018 has sped by like a bullet. I cannot believe that we are about to begin the holiday season. In some ways, I love this time of year.
What I love about this time of year…
I like the weather better, for sure. I live in Texas where it is hot a good portion of the year. I look forward to cooler temperatures and always dream of a “white Christmas,” though the likelihood of having one is quite slim.
Before I got lung cancer, I was passionate about grant writing for K12 education and running my dogs in agility. As a lung cancer patient, I am very passionate about the following five things…
Advocating for funding to support research
Anyone who knows me or reads much of what I write knows that I am absolutely consumed with trying to get more money for lung cancer research. Not only do I attempt to fundraise for various lung cancer-related organizations, but I also write to my state and federal legislators on a frequent basis. I always request funding in amounts as significant as the death rate from lung cancer demands.
Gratitude unlocks the fullness of life. It turns what we have into enough, and more. It turns denial into acceptance, chaos to order, confusion to clarity. It can turn a meal into a feast, a house into a home, a stranger into a friend. Melody Beattie
Begin your day with gratitude
Sometimes when we are delivered a blow, like learning that we or a loved one has lung cancer, it is hard to find reasons to be grateful. But, I believe that searching for and finding gratitude, even in the face of adversity, is vital.
Okay, this post is probably going to have a lot of people looking at me and thinking I have gone stark-raving crazy. But, here goes anyway!
What would life without cancer be like?
I participate in a forum whose participants have all kinds of different cancers. Today, a post was made that asked, “Do you get wrapped up in thinking about what might have been if cancer hadn’t come?” The person who asked the question is livid that she has cancer.
I recently saw a study that found that lung cancer patients who do not have anxiety or depression live longer than those who do.1 I was surprised to find this information because I have always been told that attitude might make your remaining life happier, but it has no impact on how long you live.
I have already written about my excitement on Monday when I got to be interviewed for NBC Nightly News. What fun that was!!! But, it was only the beginning of an incredible week!
First Monthly Opdivo Treatment
I had to rush to my treatment appointment after the NBC interview. For nearly five years, I have gotten my treatments every two weeks. My friends, that is a lot of doctor appointments, especially for someone who previously avoided doctors like the plague. On Monday, I started getting a double dose of Opdivo. I will only go for treatments once a month.
I am so excited to have more of my life returned to me. I was a little nervous though about potential side effects. Well, it is Friday night and I have felt fine the entire time since the treatment. Yes!!!
Fun in the Sun (and the Bluebonnets)
On Tuesday, my friend Deanna drove three-plus hours to meet me in Ennis, Texas. Ennis is known for its beautiful patches of bluebonnets, the Texas state flower. Now, if you live in Texas, you live for bluebonnet season! It is a rare Texan that doesn’t head out to the bluebonnets with their kids, their dogs, their grandmas, their husbands or wives for pictures.
Deanna and I had so much fun! She lives in Florida now so I don’t get to see her often. I was blessed that she spent one of her days of vacation in Texas with me. We had a blast driving all through Ennis and Palmer and surrounding communities searching for bluebonnets. I can’t say we found a lot, but we had a lot of fun laughing and talking up a storm!!
It had been a LONG time since I had had my good camera out. I was afraid I wouldn’t remember how to use it, but a lot of it came back to me. It was good to use it again. Unfortunately, I have to remember how to reduce the file size before I can share any of them here with you.
Wednesday was a day of rest, but Thursday found me back at the gym with my friend Linda. We have been trying to work out at least twice a week since the new year began. She is a little better about making the goal plus some than I am. That’s probably why she’s having a little better results than I am, too!
Nevertheless, while I guess it is not “fun,” exactly, to go to the gym, I do enjoy getting together with her. Despite being tired and sore when we leave, I do feel more energized. I can tell I am stronger. Now, if only, I would lose some weight … or at least … some belly.
Thursday afternoon, I listened to a Webinar on advocating to Congress in preparation for the Life and Breath rally in Washington, DC next week. Immediately following that, I participated in a market research call. I always like to do those, both because I make a little spending money and because it is fun to see what potential commercials will be coming out. Oddly, I liked all three commercials I was shown. I typically don’t like or can find ways to improve the ads I’m shown.
Today, I got to have another new experience. I got to participate as a presenter in a Webinar about immunotherapy. It was a lot of fun. I had worried about my Internet service not cooperating, but today it was good. If only the guy who does our yard hadn’t shown up just about the time the Webinar started… I suspect there will be a lot of lawn mowing noises in the background when the Webinar is published.
I also tried making a video to post on WhatNext. For a first try, it wasn’t bad. I got a kick out of the fact that Espy decided that it was the perfect time for some petting, affection, and purring. Like with the yard mowing, timing is everything!
I have a few down days now, which I need. I leave for Washington, DC on Wednesday morning. I have a 6AM flight so we’ll have to be at the airport by 4 AM. It takes about an hour to get there. Maybe I won’t go to bed??? I’m sleepy just thinking about it!
I hope you’ve also had a fun and interesting week!