There are a few articles hitting the news lately about how too much sitting contributes to a number of cancers. The reason for this spate of news is a talk given by Charles Matthews of the National Cancer Institute (NCI) at the annual American Association for the Advancement of Science (AAAS) meeting held in Austin, TX in February 2018, “Unraveling the Relations Between Sedentary Behavior, Physical Activity and Health.” Matthews is in the process of helping rewrite the NCI’s 10-year-old exercise guidelines, based in part on what large epidemiologic studies using accelerometers are showing with regard to what constitutes beneficial exercise. (For anyone like me who doesn’t know what epidemiologic studies are – they are “studies of how often diseases occur in different groups of people and why.”1)
I recently saw a study that found that lung cancer patients who do not have anxiety or depression live longer than those who do.1 I was surprised to find this information because I have always been told that attitude might make your remaining life happier, but it has no impact on how long you live.
When I think about my chemotherapy experience, I think of three things: vomiting my guts up, severe constipation and extreme fatigue. My chemo treatments were on a 3-week rotation. I suffered mightily during the first week, felt better the second week, and felt pretty darn good by the third week. The vomiting only lasted a few days, constipation lasted a bit longer.
When I was diagnosed with lung cancer, I didn’t know anyone else who was still alive and fighting the disease. I started searching around and ultimately landed on a group where I feel totally at home – it is called WhatNext.
I am going to post two links below that will help you know if you think WhatNext will be a good fit for you. I go to a lot of different lung-cancer related forums, but I spend most of my time on WhatNext. It feels like home to me.
On WhatNext, there are caregivers and loved ones, survivors, and people from the medical field for all kinds of cancer from skin cancer to liver, lung, or lymphoma cancers. Take a look at the information below and please join, if it sounds like a place you’d like to be a part of!
This link tells you a lot of the benefits of the group in an advertising way: https://www.whatnext.com/ilp/lungcancer/?campaign=AMLC
SandiA is a Stage 4 Melanoma survivor who is active on the site. She tells you why she loves WhatNext so much!
Let me know if you joined the group because you saw this post! I look forward to seeing you! I think you’ll love it there as much as I do!
About the Life and Breath Rally
Needed: EVERYONE — No joke. We need everyone’s voice and support.
Date: Thursday, April 26, 2018
Time: 10 a.m. to noon
Place: Capitol Hill, Washington, DC
(First St. SE & Independence Ave. SE – on the east side of the Capitol building)
Nearest Metro Stop: Capitol South on the Orange, Blue and Silver lines
Register here: https://www.LABrally.eventbrite.com
Everyone needs to try to come if they can ! If we don’t raise awareness, who will? We have to get the word out that funding for lung cancer is not equitable and that people with lungs get lung cancer, not just smokers!!
If you cannot attend, please, please, please write to your legislators. If enough of us demand equitable funding for this national disgrace, it will happen.
Remember, 1 in 17 women and 1 in 16 men will be diagnosed with lung cancer. Which one of your friends or family members will it be? Don’t you hope that there is a treatment, if not a cure, to save them?
Lung cancer affects us all. And it is up to each and every one of us to do our part to see equitable funding for research.
I have already written about my excitement on Monday when I got to be interviewed for NBC Nightly News. What fun that was!!! But, it was only the beginning of an incredible week!
First Monthly Opdivo Treatment
I had to rush to my treatment appointment after the NBC interview. For nearly five years, I have gotten my treatments every two weeks. My friends, that is a lot of doctor appointments, especially for someone who previously avoided doctors like the plague. On Monday, I started getting a double dose of Opdivo. I will only go for treatments once a month.
I am so excited to have more of my life returned to me. I was a little nervous though about potential side effects. Well, it is Friday night and I have felt fine the entire time since the treatment. Yes!!!
Fun in the Sun (and the Bluebonnets)
On Tuesday, my friend Deanna drove three-plus hours to meet me in Ennis, Texas. Ennis is known for its beautiful patches of bluebonnets, the Texas state flower. Now, if you live in Texas, you live for bluebonnet season! It is a rare Texan that doesn’t head out to the bluebonnets with their kids, their dogs, their grandmas, their husbands or wives for pictures.
Deanna and I had so much fun! She lives in Florida now so I don’t get to see her often. I was blessed that she spent one of her days of vacation in Texas with me. We had a blast driving all through Ennis and Palmer and surrounding communities searching for bluebonnets. I can’t say we found a lot, but we had a lot of fun laughing and talking up a storm!!
It had been a LONG time since I had had my good camera out. I was afraid I wouldn’t remember how to use it, but a lot of it came back to me. It was good to use it again. Unfortunately, I have to remember how to reduce the file size before I can share any of them here with you.
Wednesday was a day of rest, but Thursday found me back at the gym with my friend Linda. We have been trying to work out at least twice a week since the new year began. She is a little better about making the goal plus some than I am. That’s probably why she’s having a little better results than I am, too!
Nevertheless, while I guess it is not “fun,” exactly, to go to the gym, I do enjoy getting together with her. Despite being tired and sore when we leave, I do feel more energized. I can tell I am stronger. Now, if only, I would lose some weight … or at least … some belly.
Thursday afternoon, I listened to a Webinar on advocating to Congress in preparation for the Life and Breath rally in Washington, DC next week. Immediately following that, I participated in a market research call. I always like to do those, both because I make a little spending money and because it is fun to see what potential commercials will be coming out. Oddly, I liked all three commercials I was shown. I typically don’t like or can find ways to improve the ads I’m shown.
Today, I got to have another new experience. I got to participate as a presenter in a Webinar about immunotherapy. It was a lot of fun. I had worried about my Internet service not cooperating, but today it was good. If only the guy who does our yard hadn’t shown up just about the time the Webinar started… I suspect there will be a lot of lawn mowing noises in the background when the Webinar is published.
I also tried making a video to post on WhatNext. For a first try, it wasn’t bad. I got a kick out of the fact that Espy decided that it was the perfect time for some petting, affection, and purring. Like with the yard mowing, timing is everything!
I have a few down days now, which I need. I leave for Washington, DC on Wednesday morning. I have a 6AM flight so we’ll have to be at the airport by 4 AM. It takes about an hour to get there. Maybe I won’t go to bed??? I’m sleepy just thinking about it!
I hope you’ve also had a fun and interesting week!
Have you ever considered participating in a clinical trial? If you haven’t, you are in the majority. In fact, according to Patient Advocate Foundation,“ less than 5 percent of adults diagnosed with cancer each year will get treated through enrollment in a clinical trial.”
I find this stat extremely sad for two reasons. The first is that without participants clinical trials cannot be conducted. If treatments cannot be tested in trials, they will never be approved by the FDA, so they will not be available to cancer patients. A study by Fred Hutchinson Cancer Research Center and the University of Washington found that nearly 20 percent of publicly funded clinical trials fail due to lack of participation.
originally published 10/6/2016
“Study nature. Love nature. Stay close to nature. It will never fail you.” –Frank Lloyd Wright
Since I have been surviving cancer, I have really, really enjoyed visiting the gardens at the Dallas Arboretum. Whether I go with friends or by myself, I am filled with gratitude and peace while I am there. I consider my enjoyment of the gardens as one of the blessings of having cancer, because unfortunately, before being diagnosed with cancer, I never took the time to go.
Originally published March 10, 2016
I have to begin this blog on a sad note. There have been personal and national tragedies that occurred since I agreed to write a blog about hope and optimism. I lost three friends to cancer in a week’s time … and last night, my city lost five police officers who were gunned down in cold blood while doing their job of overseeing a peaceful protest march. Sometimes, events make it hard to see joy and optimism, but it’s still there. We just have to look a little harder.
Even though I will miss my friends badly, they each outlived their prognosis for stage IV lung cancer by years. The reason they beat the statistics and had years added to their lives after being diagnosed is because of the huge advances being made every single day in new treatment options.
originally published July 14, 2016