Category Archives: lung cancer

Help! I Can’t Get a Good Breath!

I recently saw a question raised by a lung cancer survivor who was experiencing difficulty breathing after radiation treatments. She wanted to know what tips we had that could help her improve her breathing.

I am very fortunate because I have not personally experienced many breathing issues. So, I put Dr. Google to work in order to try to answer her question.

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An Open Letter to Caregivers

Dear Caregiver,

I was diagnosed with stage IV lung cancer back in October 2012. While I am feeling quite well most of the time now, we went through a period of time when it was far more touch and go. I thought it might be helpful for you to hear from me, as a patient.

In lots of ways, I doubt my husband and I have experienced the same frustrations as many of you have. I have been mostly healthy, despite my dire diagnosis. So, I may not answer many of your questions with this missive, but I hope I address at least a few.

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Women and Lung Cancer Research and Preventive Services Act of 2018

In today’s political climate, it isn’t often that you hear about a bill that enjoys bipartisan support, but the Women and Lung Cancer Research and Preventive Services Act of 2018 does. The bill has been introduced into the House (HR 4897) and the Senate (S2358). Now, it is up to us to try to get our legislators to show their support of the bills by becoming co-sponsors.

Why is this bill important?

I believe it is critical for this bill to pass through Congress. Essentially, it is asking for the following:

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Precision Medicine 101

Have you heard of Precision Medicine? If you haven’t, you are certainly not alone! But, it is very important for you to know it exists, what it is, and how it can benefit you.

What is precision medicine?

The National Institute of Health (NIH) says this about precision medicine:

“Precision medicine is “an emerging approach for disease treatment and prevention that takes into account individual variability in genes, environment, and lifestyle for each person.”1

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A tribute to my dad

We got the dreaded and totally unexpected news that my 48-year-old dad had stage IV lung cancer after he underwent a routine physical exam. He’d been having some pain in his knee, but we (and all of the doctors he saw) attributed it to some sort of strain that he got from driving from Texas to Washington, DC and back again in a relatively short period of time. Otherwise, he had no symptoms of any disease, much less lung cancer.

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Get Your Smile On

Laughter is the tonic, the relief, the surcease for pain.  –Charlie Chaplin

I recently listened to a Webinar put on by the Texas Oncology Foundation that was called Survivorship: Your Story, Your Impact. It was nothing like what I expected it to be. In fact, the main takeaway that I got from it was the importance of smiling.

We’re all wearing smiles

To tell you the truth, I may be preaching to the choir. When I think of my friends who are also lung cancer survivors, they all are wearing smiles. I swear they are literally some of the most optimistic and happy people I know.

 

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What Will They Say?

Several days ago, I got a text message telling me that a former colleague and friend had passed away unexpectedly. I had seen her recently and she was her usual happy self. We made plans to get together for lunch soon. I guess none of us realized that her days here on earth were coming to a close.             …More

Looking at the Positives of Having Lung Cancer – Am I Crazy?

Okay, this post is probably going to have a lot of people looking at me and thinking I have gone stark-raving crazy. But, here goes anyway!

What would life without cancer be like?

I participate in a forum whose participants have all kinds of different cancers. Today, a post was made that asked, “Do you get wrapped up in thinking about what might have been if cancer hadn’t come?” The person who asked the question is livid that she has cancer.

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A Day in History

Five years ago today, May 8, 2013, I quit getting chemotherapy. I have to say, it was a happy, happy day for me to learn that I would not be getting chemo any longer. Chemo and I … we didn’t deal well with one another. No matter how many anti-nausea pills I took, no matter how long I took steroids, no matter what, I was sick, sick, sick from my treatments.

I’ve never been a sickly person. At all. I didn’t even have a primary care doctor that fateful day when I finally went in to see why I kept gaining weight … and we discovered that I had late-stage lung cancer. I hadn’t seen a doctor for 10 years or more (yeah, I’m one of those people who definitely didn’t take care of themselves with regular screenings or anything else).

So, when I was so sick from chemo, I didn’t deal well with it. I don’t know, maybe even if I had been more sickly, I still wouldn’t have dealt well with it! There were times, many times, when I wondered if it was even worth going through the treatments. I was spending way too much of my very limited time (my oncologist projected 4 months before I passed away) in bed, too sick to eat or drink or do anything except try to sleep away the misery.

At the same time as I was celebrating the fact that I was getting a break from chemotherapy, there was definitely some fear associated with quitting treatments! No treatments meant nothing was being done to hold those tumors at bay. Sure, they’d responded and shrunk some during treatments, but that was because we were bombarding them with poisons!

My doctor hoped that I could take a break from the chemo and that the tumors would stay stable or, if they grew, would do so slowly. Unfortunately, as we would discover when I had my next scan, his hopes were not realized. All of the progress we had made against the tumors was lost during the short time I was not receiving treatments.

As I sit here today, pondering my life and the fact that I am still here, I am grateful that I was diagnosed with my cancer when I was. It is sobering to think that if I had been diagnosed only one year earlier, I would probably be dead.

Stop and think about that for just a moment. It is hard to think about. And, many of us have friends and loved ones who have succumbed to the disease, even recently. They were diagnosed too soon to be saved. Why? Well, partly because lung cancer is a really tricky disease. You often don’t have symptoms until you have only months left to live. So, doctors are faced with an uphill battle because late-stage cancer is really difficult to treat.

Another reason why we are still losing way too many of those diagnosed with lung cancer is because it is so very severely underfunded. Researchers are making such tremendous progress in finding new ways to treat this insidious disease, but they are limited by the lack of money available to them. It boggles my mind to think about what they could be doing if they had the kind of money that breast cancer or prostate cancer gets each year.

So, the purpose of this post is two-fold. First, I want to thank everyone who generously gives to help fund research. You are quite literally lifesavers. If not for your heart and your help, people like me would not have had cutting-edge therapies to try when chemotherapy quit working. Thank you, thank you, thank you! From the bottom of my heart, thank you!

The second is that I want to encourage everyone to give to lung cancer research. It doesn’t have to be much. If everyone I know gave only $5 or $10, it would add up to a reasonable amount of money. If they shared with their friends and their friends gave only $5 or $10, the cost of a Starbucks and a donut, the funding would begin to snowball and just think of where we might be in finding … dare I say … cures … or, at least, therapies that could help treat this disease as a chronic illness instead of the killer it still is.

It hurts my feelings and boggles my mind that I have so much trouble getting people to give to this cause. It hurts my feelings because I take it very personally. It’s MY LIFE I am advocating for! Opdivo is keeping me alive right now. But, when it quits working, there is not another treatment for me to try. Selfishly, I want researchers well-funded so that I have some more options when that time comes.

It boggles my mind because even those who contact me and want me to pray for or talk to a loved one of theirs who has been diagnosed don’t give toward finding better therapies. If not those who either have someone living with or who has died from lung cancer, then who can we expect to help fund life-saving research?

Where can you donate? A few of the foundations that I support are:

Bonnie J. Addario Lung Cancer Research Foundation

LUNGevity (if there is a way to designate that you’re donating on my behalf, please do!)

Lung Cancer Research Foundation (where Free to Breathe merged) – I will be posting a link to a donation site on my behalf soon)

Lung Cancer Alliance (if there is a way to designate that you’re donating on my behalf, please do!)

Cancer Research Institute (not lung cancer specific, but cutting edge in immunotherapy)