Category Archives: lung cancer awareness

November is Lung Cancer Awareness Month

Everyone knows that October is Breast Cancer Awareness Month, but we keep the fact that November is Lung Cancer Awareness Month a better secret. Unfortunately, the flood of pink will not be replaced by a flood of white (the color assigned to lung cancer) on November 1.

But, we can all do our small part in helping raise awareness about and funding for lung cancer during November (and throughout the year). It is important that we get the word out about this deadly disease. Lives are depending on it!

….MORE

Lung Cancer Awareness Month – it’s here again!

I always look forward to November. I love this month. Temperatures are mainly cooler … and when you live in Texas, that’s a very good thing. We are scorched for way too many months out of the year.

Thanksgiving is one of my favorite holidays. I love the food (we go traditional with turkey, cornbread dressing, green bean bundles, sweet potato casserole, mashed potatoes, a family tradition of banana salad, corn, pies, yum!). I love the whole idea of concentrating on what we’re thankful for – purposefully thinking about what’s good in our lives, even things that don’t always seem so good.

Our family is very patriotic and many of my family members have served in the military. I love to celebrate Veteran’s Day and the USMC birthday and the day my son graduated from USMC boot camp.

And, it is Lung Cancer Awareness Month. It probably drives people crazy, but I post every single day something about lung cancer for those who are my friends on Facebook. This year, I’ll be also posting something to the WhatNext pinboard. Everyone there has been touched by cancer of some kind so maybe it is overkill, but I’ll do it anyway.

Six years ago, November was a month full of firsts for me – first PET scan, first visit with an oncologist, first biopsy. I guess those aren’t firsts most people want to experience. Nevertheless, November of 2012 was full of those things for me. Lots of new memories. They seem like so long ago now.

So, I celebrate November and all I love about it. And, I celebrate that I am here another November to enjoy all that I love. I am among the lucky ones. I don’t know why and I am well aware that one of these days my time will run out, but until then, I thank my God and carry forward.

Lung Cancer Drives My Passions

Before I got lung cancer, I was passionate about grant writing for K12 education and running my dogs in agility. As a lung cancer patient, I am very passionate about the following five things…

Advocating for funding to support research

Anyone who knows me or reads much of what I write knows that I am absolutely consumed with trying to get more money for lung cancer research. Not only do I attempt to fundraise for various lung cancer-related organizations, but I also write to my state and federal legislators on a frequent basis. I always request funding in amounts as significant as the death rate from lung cancer demands.

…MORE

I admit it. I’m jealous of Pinktober

Are you ready for it? October will be here before we know it. You know what that means. Everything will be covered in pink.

A closer look at the statistics

According to the National Institutes of Health (NIH), breast cancer killed slightly more than 51,000 people, mostly women, in 2015¹. If one of those who died was your mom, sister, daughter or best friend, it hurt a lot to lose them. Fortunately, the American Cancer Society (ACS) reports that the five-year survival rate for women diagnosed with breast cancer is 90%.²

…MORE

Women and Lung Cancer Research and Preventive Services Act of 2018

In today’s political climate, it isn’t often that you hear about a bill that enjoys bipartisan support, but the Women and Lung Cancer Research and Preventive Services Act of 2018 does. The bill has been introduced into the House (HR 4897) and the Senate (S2358). Now, it is up to us to try to get our legislators to show their support of the bills by becoming co-sponsors.

Why is this bill important?

I believe it is critical for this bill to pass through Congress. Essentially, it is asking for the following:

MORE

A tribute to my dad

We got the dreaded and totally unexpected news that my 48-year-old dad had stage IV lung cancer after he underwent a routine physical exam. He’d been having some pain in his knee, but we (and all of the doctors he saw) attributed it to some sort of strain that he got from driving from Texas to Washington, DC and back again in a relatively short period of time. Otherwise, he had no symptoms of any disease, much less lung cancer.

MORE

A Day in History

Five years ago today, May 8, 2013, I quit getting chemotherapy. I have to say, it was a happy, happy day for me to learn that I would not be getting chemo any longer. Chemo and I … we didn’t deal well with one another. No matter how many anti-nausea pills I took, no matter how long I took steroids, no matter what, I was sick, sick, sick from my treatments.

I’ve never been a sickly person. At all. I didn’t even have a primary care doctor that fateful day when I finally went in to see why I kept gaining weight … and we discovered that I had late-stage lung cancer. I hadn’t seen a doctor for 10 years or more (yeah, I’m one of those people who definitely didn’t take care of themselves with regular screenings or anything else).

So, when I was so sick from chemo, I didn’t deal well with it. I don’t know, maybe even if I had been more sickly, I still wouldn’t have dealt well with it! There were times, many times, when I wondered if it was even worth going through the treatments. I was spending way too much of my very limited time (my oncologist projected 4 months before I passed away) in bed, too sick to eat or drink or do anything except try to sleep away the misery.

At the same time as I was celebrating the fact that I was getting a break from chemotherapy, there was definitely some fear associated with quitting treatments! No treatments meant nothing was being done to hold those tumors at bay. Sure, they’d responded and shrunk some during treatments, but that was because we were bombarding them with poisons!

My doctor hoped that I could take a break from the chemo and that the tumors would stay stable or, if they grew, would do so slowly. Unfortunately, as we would discover when I had my next scan, his hopes were not realized. All of the progress we had made against the tumors was lost during the short time I was not receiving treatments.

As I sit here today, pondering my life and the fact that I am still here, I am grateful that I was diagnosed with my cancer when I was. It is sobering to think that if I had been diagnosed only one year earlier, I would probably be dead.

Stop and think about that for just a moment. It is hard to think about. And, many of us have friends and loved ones who have succumbed to the disease, even recently. They were diagnosed too soon to be saved. Why? Well, partly because lung cancer is a really tricky disease. You often don’t have symptoms until you have only months left to live. So, doctors are faced with an uphill battle because late-stage cancer is really difficult to treat.

Another reason why we are still losing way too many of those diagnosed with lung cancer is because it is so very severely underfunded. Researchers are making such tremendous progress in finding new ways to treat this insidious disease, but they are limited by the lack of money available to them. It boggles my mind to think about what they could be doing if they had the kind of money that breast cancer or prostate cancer gets each year.

So, the purpose of this post is two-fold. First, I want to thank everyone who generously gives to help fund research. You are quite literally lifesavers. If not for your heart and your help, people like me would not have had cutting-edge therapies to try when chemotherapy quit working. Thank you, thank you, thank you! From the bottom of my heart, thank you!

The second is that I want to encourage everyone to give to lung cancer research. It doesn’t have to be much. If everyone I know gave only $5 or $10, it would add up to a reasonable amount of money. If they shared with their friends and their friends gave only $5 or $10, the cost of a Starbucks and a donut, the funding would begin to snowball and just think of where we might be in finding … dare I say … cures … or, at least, therapies that could help treat this disease as a chronic illness instead of the killer it still is.

It hurts my feelings and boggles my mind that I have so much trouble getting people to give to this cause. It hurts my feelings because I take it very personally. It’s MY LIFE I am advocating for! Opdivo is keeping me alive right now. But, when it quits working, there is not another treatment for me to try. Selfishly, I want researchers well-funded so that I have some more options when that time comes.

It boggles my mind because even those who contact me and want me to pray for or talk to a loved one of theirs who has been diagnosed don’t give toward finding better therapies. If not those who either have someone living with or who has died from lung cancer, then who can we expect to help fund life-saving research?

Where can you donate? A few of the foundations that I support are:

Bonnie J. Addario Lung Cancer Research Foundation

LUNGevity (if there is a way to designate that you’re donating on my behalf, please do!)

Lung Cancer Research Foundation (where Free to Breathe merged) – I will be posting a link to a donation site on my behalf soon)

Lung Cancer Alliance (if there is a way to designate that you’re donating on my behalf, please do!)

Cancer Research Institute (not lung cancer specific, but cutting edge in immunotherapy)

 

Advocating for Lung Cancer to Get “Equal Time”

I am on a forum with people who have all kinds of cancer. A lot of the members have had breast cancer so many posts there relate to issues concerning that disease.

Recently, someone posted a message saying that the federal government’s Office on Women’s Health (OWH) had deleted all references to breast cancer, despite once having a rather robust amount of information available. Those with breast cancer were quite upset about the information being removed. Honestly, I thought it was a little odd, too, that it would be removed.

….More

Advocating for Fairness in Lung Cancer Funding – Life and Breath Rally

About the Life and Breath Rally

Needed: EVERYONE — No joke. We need everyone’s voice and support.

Date: Thursday, April 26, 2018

Time: 10 a.m. to noon

Place: Capitol Hill, Washington, DC
(First St. SE & Independence Ave. SE – on the east side of the Capitol building)

Nearest Metro Stop: Capitol South on the Orange, Blue and Silver lines

Register here: https://www.LABrally.eventbrite.com

Everyone needs to try to come if they can !  If we don’t raise awareness, who will? We have to get the word out that funding for lung cancer is not equitable and that people with lungs get lung cancer, not just smokers!!

If you cannot attend, please, please, please write to your legislators. If enough of us demand equitable funding for this national disgrace, it will happen.

Remember, 1 in 17 women and 1 in 16 men will be diagnosed with lung cancer. Which one of your friends or family members will it be? Don’t you hope that there is a treatment, if not a cure, to save them?

Lung cancer affects us all. And it is up to each and every one of us to do our part to see equitable funding for research.