For some reason, every time one of my friends knows someone with lung cancer, they turn to me for comfort. I don’t really know why, except that they know I have “been there done that.” I’m very happy to help in any way I can. More often than not, the person with cancer doesn’t want to talk to me, but their loved ones do. I guess I give them some perspective on what it is like to live with lung cancer.
Before I got lung cancer, I was passionate about grant writing for K12 education and running my dogs in agility. As a lung cancer patient, I am very passionate about the following five things…
Advocating for funding to support research
Anyone who knows me or reads much of what I write knows that I am absolutely consumed with trying to get more money for lung cancer research. Not only do I attempt to fundraise for various lung cancer-related organizations, but I also write to my state and federal legislators on a frequent basis. I always request funding in amounts as significant as the death rate from lung cancer demands.
Every single day, it is estimated that 433 people die from lung cancer. And, sometimes, it seems like the only people who care about that are the loved ones who have to say goodbye.
I just read a draft of a blog post I wrote awhile back and the old children’s song we used to sing in church came to my mind, “There’s joy, joy, joy, joy, down in my heart, down in my heart, there’s joy, joy, joy, joy down in my heart, today!” I don’t know about you, but that little ditty is now going through my mind, over and over again. And, it is making me smile!! And, sing! Out loud! Loud! (My husband is going to wake up and wonder what in the world has happened to his wife!!)
When I was diagnosed with lung cancer, the chances that a late-stage lung cancer patient would live five years was merely 4%. In fact, the American Lung Association, even today, gives the following survival rates:
“The five-year survival rate for lung cancer is 55 percent for cases detected when the disease is still localized (within the lungs). However, only 16 percent of lung cancer cases are diagnosed at an early stage. For distant tumors (spread to other organs) the five-year survival rate is only 4 percent.”1
I am dumbfounded right now. I just finished writing a blog post that is highly critical of my Representative in Congress. I now have to retract what I wrote (it was never published) and tell a slightly different story. I am delighted to have to make the change.
Here’s the story
I went to Washington, DC last week. I joined about 150 others who were at the Lung Cancer Alliance 10th Annual Summit. The purpose of our meeting was to lobby our Congressional leaders to (1) cosponsor the Women and Lung Cancer Research and Preventive Services Act of 2018 (S. 2358 / H.R. 4897) and (2) restore $6 million in funding to the Lung Cancer Research Program within the Congressional Directed Medical Research Program administered by the Department of Defense (DOD).
In today’s political climate, it isn’t often that you hear about a bill that enjoys bipartisan support, but the Women and Lung Cancer Research and Preventive Services Act of 2018 does. The bill has been introduced into the House (HR 4897) and the Senate (S2358). Now, it is up to us to try to get our legislators to show their support of the bills by becoming co-sponsors.
Why is this bill important?
I believe it is critical for this bill to pass through Congress. Essentially, it is asking for the following:
Have you heard of Precision Medicine? If you haven’t, you are certainly not alone! But, it is very important for you to know it exists, what it is, and how it can benefit you.
What is precision medicine?
The National Institute of Health (NIH) says this about precision medicine:
“Precision medicine is “an emerging approach for disease treatment and prevention that takes into account individual variability in genes, environment, and lifestyle for each person.”1
Have you ever visited a Cancer Support Communities (CSC) clubhouse? Every time I go, I think I will be more active. I went yesterday and once more, I am vowing to go more often.
No one faces cancer alone
You may know CSC as Gilda’s Club, named after the famed comedian, Gilda Radner, who passed away from ovarian cancer in 1989. Regardless of the name your center goes by, its mission is to ensure that “no one faces cancer alone.”