Cancer is nothing when you have hope!! This site is all about living … and living well … with late-stage cancer. I hope you will journey along with me through the ups and downs of living with lung cancer.
Here I am … waiting on my treatment drugs to be prepared. For those who don’t know, it takes about an hour, barring no problems, for the pharmacy to prepare the drugs. For my treatments, it also takes an hour to drip.
So, here’s the process:
arrive at the hospital, preferably 15 minutes or so before 1st appointment. The first appointment is for blood draw. This is where my port is accessed and three or 4 vials of blood are drawn.
Go back to the waiting room for 45 minutes or an hour. During this time, the lab analyzes the blood.
Go in to see the doctor. This visit usually doesn’t last too long because I am fortunate enough to always have perfect blood test results. This is also when vitals are taken: blood pressure (like a teenager’s), oxygen (97 up to 100), temperature (97 to 98), weight (way too high).
After seeing the doctor, we return to the waiting room until we are called for the infusion.
We are set up in a room, saline drip is started, we wait on the pharmacy to get my drugs ready, and we play some more on our electronics.
Finally, the drug is ready and the count-down begins. One more hour before we get to go home!
I told my husband today that i am tired of coming to get treatments every 2 weeks. He understood. I feel like it takes too much of my time. Then, i have to remember, without this treatment, i would likely not still be alive. So this day we give every two weeks is like dues. The price I pay to be alive. Small price to pay. Never mind my poor attitude.
So, i had another CT scan on Monday. With the trial i am on, CT scans have to be done every six weeks. Way more often than i would like. But, at least i don’t have to worry about how i am doing. Some people wait three to six months between scans, even when they are in active treatment.
There is something called scanxiety. It is the fear cancer patients have about the results of their scans. I never have had it. Not even when i was getting regular chemo and didn’t get so many scans. I am not a worrier. God has control. When He is ready to take me home, my scans will go south. Until then, i expect they will be fine.
Which brings me to … my scans remain fabulous. Dr. Gerber said he wouldn’t pretend everyone has such good results, because they don’t. But, for me, immunotherapy has been, quite literally, a Godsend. My tumors don’t go away, unfortunately, but they have neither grown nor spread since the first treatment i had back in July 2013. Before i started on this clinical trial, i was given very little hope.
I love my doctor! I am so very fortunate. Dr. Gerber is the best! I really loved the oncologist i had before, too, though my memories are growing dimmer as time passes on since i last saw him. And, my PCP … oh my gosh … i can’t even say enough good about her. Like i said, i am one extremely lucky lady.
I love UTSW. The entire facility. Based on my personal experiences, every member of the staff, from the ladies who check us in, to the aides who bring us to our rooms, to the nurses, to the doctors is excellent. Upbeat. Smiling. Friendly. Fabulous. (Anyone have a thesaurus? I think i need a different word … i keep using this one)
Anyway, back to today’s story…
We go in to see the doctor. He calls me a superstar. It’s because my scans were so good again (the only way they would be better is if the tumors would go away. There are some radiologists who do believe the tumors are only scars, but we don’t know. I personally tend to agree. I don’t feel sick or look sick or act sick…) I know an oncologist loves having a patient like me. I am all but healthy. I am hope.
My wonderful, personable doctor asks me about my dogs. Anyone who knows me knows how important my dogs are to me. Dr. Gerber is a very busy doctor, but he has taken time to watch and enjoy my agility videos. And, today, he proudly told us about his new dog! He has rescued a 6 year Australian shepherd and he is very obviously quite taken by his Maggie! It was so much fun listening to him telling us how smart she is and what a good catcher she is!
It leaves me feeling happy and fulfilled to have medical personnel with whom we can chat. Not just about health, but about other interests as well. It sure makes these every 2 week visits a lot more palatable!
I haven’t updated my blog in a long time. How does that help provide hope? It doesn’t … so here i am, hopefully able to provide hope to any of you who have been diagnosed with lung cancer or who have loved ones who have been diagnosed.
I was first diagnosed in October 2012. I have passed the critical one year milestone and will see the 3 year mark, God willing, in just a few more months. Trust me, i thank my Lord every single day for my life. So very many don’t make it even a Year.
I love being alive and on this earth. Here to enjoy my family, friends, and dogs. But, God is good whether He decides to leave me here on earth or bring me home to Him. Talk about a win-win situation! i just can’t lose!
While i am here, i try hard to live every day to the fullest. Fortunately, i feel good, thanks to the immunotherapy i receive every two weeks. Barring bad news from the CT scans i had today, my tumors have remained stable since i began my immunotherapy clinical trial in 7/2013. Praise God!
So, what does living look like For this stage IV lung cancer survivor?
Dogs, dogs, dogs!
My dogs continue to dominate my life. They bring me such joy and give me so many reasons to want to live.
It is funny to post a snow picture since it is nearly 80 outside on this late March day. But, those two lovers of life get such joy out of the very limited snow we get here in Texas. Cotton also gets great joy in rolling in coyote poop. You can see how nicely she decorated herself in this picture!
The dogs and i meet our friends Linda and Louie (her precious Pom/Eskie mix) nearly every day to walk. We used to walk at least 3 miles every day. Lately, we have cut that down to around two miles because we come back to a field to practice obedience/agility skills.
Linda and I are fortunate enough to be taking agility lessons with Ed Scharringhausen at Run As One Agility. I have taken lots of classes over the last 6 years. Our classes with Ed make all others pale in comparison. We practice the skills he teaches us all week so that our dogs will be ready to move on when we return to class.
We also take classes with Pam White. Like Ed, she will analyze our runs from trials and is working hard with us to teach us distance and obedience skills. We are so fortunate to have two teachers who put so much into us and our dogs.
So, what’s this agility about which I speak so fondly?
This is Barney and me running a jumpers agility course. The handler directs their dog around a numbered course. Speed and accuracy are required.
Here is another run from the March 2015 Run As One trial:
Here, the dog must navigate a number of different obstacles. Barney and I LOVE to play agility. As you can see, it takes a great deal of energy.
I have not been able to participate in lessons or trials like i did before i was diagnosed. My stamina is not as good and my pocketbook is much slimmer than it was. However, with the current 2 classes a week and, hopefully, at least a trial a month, we are coming back!
Cotton doesn’t play agility as much. She’s an awesome agility dog, but she doesn’t always care to participate. Like all sports, it is somewhat expensive. Since my funds are now so limited, i mostly train and trial with Barney, my boy who loves to please and loves to play agility.
As you watch the videos, remember it is a stage IV lung cancer survivor running those courses. Awesome, huh?
Just for fun, i will post a video of Cotton from the December 2014 trial. First, you will see Barney run the course as designed and then you will see Cotton.
Hmmm, the formatting just went south…
Here we go! Formatting restored!
My favorite thing to do is spend time with my dogs and friends who also love dogs. But, especially as the weather warms, i also enjoy container gadening, watching the birds, and photography.
For the first time, i am trying herb gardening. I love my 3-tiered pot. Just bought two more from Amazon … one for mom and another for me. I am going to put some tomatoes and strawberries in the new pot. Not sure what else… i can’t wait to see how it goes! Fresh tomatoes and strawberries sounds heavenly though, huh?
I haven’t taken many pictures lately nor have i had time to really spend watching my birds. Soon, the hummers will be back … can’t wait!! Will have to find some time to enjoy these activities.
It is also nearly bluebonnet time here in Texas. I LOVE the bluebonnets. I combine 3 loves during the month or so they are out: my dogs, flowers, and photography! Here’s an example from last year:
Well, Robert is hungry. I need to end this and get him something to eat.
Here’s my final thought : if you have been diagnosed with lung cancer, even late stage lung cancer, do not give up! There is still life to be had. Grab it with gusto!
The CDC just released its latest statistics for cancer survivors. A survivor is anyone who has been diagnosed with cancer and is still alive. They may or may not still be undergoing treatments. They may have lived 20 years since diagnosis or 20 minutes.
The news in the report is actually quite good for many cancer survivors. It seems research has finally gotten a handle on lots of cancers and, while it is a huge inconvenience to be told you have cancer (understatement?!), your chances of surviving for at least five years are remarkably good.
For instance, prostate cancer is the most frequently diagnosed cancer. Over 233,000 men were told they had prostate cancer in 2014. Fortunately, 99% of them will be alive in five years. Caution: 1% don’t make it. Don’t wait around! One of our best friends died of prostate cancer and it wasn’t pretty.
The next most common cancer is breast cancer. Pink anyone? (Is anyone else as tired of the pink campaign as i am??) In 2014, 232,670 men and women (but mostly women) learned they had breast cancer. Probably in large part because of all of the awareness campaigns and money thrown at research, 89% of breast cancer survivors will live five years or more.
The news goes south quickly from there. The third most common cancer is lung cancer. A whopping 224,210 people were told they have lung cancer in 2014. The majority won’t live a year. Only 17% will live to see that magical five year mark. And yet, funding for research into curing this cancer remains dismal.
There is that awful stigma that accompanies a lung cancer diagnosis. It is the smokers’ disease. And, i guess people who smoke or ever smoked deserve to die. And, i guess the thousands who never smoked but get lung cancer deserve it too. i presume this is true because there is so little support for finding cures. I am fighting to change that. So is LUNGevity (lungevity.org).
There are two cancers more deadly than lung cancer. Fortunately, they are not as prevalent. Only 6% of the 46,420 people diagnosed with pancreatic cancer will live 5 years. Liver cancer affected 33,190 in 2014. Only 16% of those people will be alive in 5 years.
These stats are dismal. It is up to us to fight for change. The more of us who lift up our voices, the better. Look at what awareness campaigns have done for breast cancer. It is time to spread the wealth. Other cancers are far more deadly and those diagnosed with them deserve to have hope and the chance to live for 5 or more years.
Please help! If you can’t contribute, you can still communicate the need to Congress and contributors.